The 2026 European Neurofibromatosis conference will focus on patient involvement in Neurofibromatosis research and care, bringing together leading experts, clinicians, researchers, and patient representatives from across Europe and beyond. Together, we will explore the latest advances in understanding and managing Neurofibromatosis type 1, NF2-related and non-related Schwannomatosis, and discuss how collaborative approaches can improve both scientific progress and patient outcomes.
The 2026 European NF Conference has been accredited for a maximum of 19 European CME credits (ECMEC®s) by the European Accreditation Council for Continuing Medical Education (EACCME®), the European accreditation body that accredits educational events worldwide. EACCME® credits are recognised by the American Medical Association (AMA) and the Royal College of Physicians and Surgeons of Canada (RCPSC), subject to their respective recognition policies.
Thursday, 12 November 2026
| Time | Sessions |
|---|---|
| 12:00-12:10 | Welcome
Amedeo Azizi, Claas Röhl
|
| 12:10-12:40 | Keynote 1: From Neural Crest to Schwann Cell Lineage
Piotr Topilko, Katharina Wimmer
|
| 12:40-14:30 | Plenary 1: Genetic Aspects of Neurofibromatosis Type 1, Schwannomatosis and Related Disorders |
| 14:30-15:00 | Coffee Break / Posters / Exhibition |
| 15:00-16:30 |
Lecture Hall 1
Clinical Session 1: Neuropsychosocial Implications
Andreu Coy, Ulrike Leiss, Andre Rietman
Lecture Hall 2
Basic Session 1: Preclinical Models for Neurofibromatosis Type 1 and Schwannomatosis Pathogenesis
Eduard Serra Arenas, Piotr Topilko
|
| 16:30-16:45 | Coffee Break / Posters / Exhibition |
| 16:45-18:15 |
Lecture Hall 1
Clinical Session 2 (Joint with Basic Science): Bone and Orthopaedic Aspects of NF1
Céline Colnot, Iwo Koryciński, Christof Radler
Lecture Hall 2
Basic Session 2: Basic Biology underlying Neurofibromatosis Type 1 and Schwannomatosis
Anna Sablina, Santiago Vernia
|
| 18:30-21:00 | Welcome Reception and Poster Area
Amedeo Azizi, Claas Röhl
|
Friday, 13 November 2026
| Time | Sessions |
|---|---|
| 07:00-08:00 |
Lecture Hall 2
The Great NF / SWN Challenge: Pearls, Pitfalls and Prizes! - For Early Birds and Wise Owls!
Amedeo Azizi, Rosalie E Ferner
|
| 08:00-09:30 |
Lecture Hall 1
Clinical Session 3: Visible Manifestations in Neurofibromatosis
Laura Fertitta, Kimberly McCoy, Pierre Wolkenstein
Lecture Hall 2
Basic Session 3: Basic and Translational Research in Schwannomatosis: Selected from Abstracts
Helen Morrisson, Priya Sharma, Miriam Smith
|
| 09:30-09:50 | Coffee Break / Posters / Exhibition |
| 09:50-10:20 | Keynote 2: Evidence to Action - How Advocacy Works Best
Rachel Giles, Claas Röhl
|
| 10:20-12:00 | Plenary 2: Together - Patient Involvement in Research and Clinic
Rachel Giles, Claas Röhl
|
| 12:05-13:05 | Industry Symposium Clinical Evidence and Expert Insights on the Management of NF1-PN |
| 13:10-14:25 | Plenary 3: Part 1: Pexiform Neurofibroma
Amedeo A. Azizi, Said C. Farschtschi, Catena Kresbach, Daan Van Dorp
|
| 14:25-14:50 | Coffee Break / Posters / Exhibition |
| 14:50-16:10 | Plenary 3: Part 2: Malignant Progression from Neurofibroma to MPNST
Said C. Farschtschi, Catena Kresbach, Daan Van Dorp
|
| 16:10-16:30 | Coffee Break / Posters / Exhibition |
| 16:30-18:00 |
Lecture Hall 1
Clinical Session 4: SWN Basket Session (Pain, Hybrid Tumours, etc.)
Gilles Atlan, Gareth Evans, Said C. Farschtschi
Lecture Hall 2
Basic Session 4: Basic and Translational Research in Neurofibromatosis Type 1: Selected from Abstracts
Hilde Brems, Herb Sarnoff, Eva Trevisson
|
| 19:30-23:00 | Conference Dinner |
Saturday, 14 November 2026
| Time | Sessions |
|---|---|
| 08:00-08:45 | Keynote 3: Organoids
Arianna Baggiolini, Christian Oberdanner, Eduard Serra Arenas
|
| 08:45-10:10 | Plenary 4: CNS Tumours in Neurofibromatosis Type 1 and Schwannomatosis
Enrico Opocher, Claas Röhl, Walter Taal
|
| 10:10-10:30 | Coffee Break / Posters / Exhibition |
| 10:30-11:50 |
Lecture Hall 1
Clinical Session 5: Imaging in Neurofibromatosis / SWN
Riccardo Buttarelli, Gregor Kasprian, Lennart Well
Lecture Hall 2
Basic Session 5: Genomics and Bioinformatics for Neurofibromatosis Type 1 and Schwannomatosis
Bernat Gel Moreno, Christian Oberdanner, Bernhard Robl
|
| 11:55-12:55 |
Lecture Hall 1
Industry Symposium
CARE FOR RARE: NF1-PN Management in Practice: A Focus on Pain, Evidence, and Clinical Cases
Lecture Hall 2
Industry Symposium
CARE FOR RARE: NF1-PN Management in Practice: A Focus on Pain, Evidence, and Clinical Cases (Transmission from Lecture Hall 1)
|
| 13:00-14:00 |
Lecture Hall 1
Clinical Session 6: Rare Manifestations
Rachel Giles, Eric Legius, Rianne Oostenbrink
Lecture Hall 2
Basic Session 6: AI and Big Data in Neurofibromatosis Type 1 and Schwannomatosis Research
Bernat Gel Moreno, Bernhard Robl
|
| 14:00-14:20 | Coffee Break / Posters / Exhibition |
| 14:20-14:40 | Best Poster Awards & Lifetime Achievement Award
Amedeo A. Azizi, Claas Röhl, Eduard Serra Arenas
|
| 14:40-15:30 | Theodor Schwann Awards and Talk by Awardees
Amedeo A. Azizi, Claas Röhl
|
| 15:30-16:30 | Plenary 5: New Therapeutic Developments – Future Clinical Trials and Clinical Trial Design – Preclinical Drug Development – Part 1
Amedeo A. Azizi, Johannes Gojo, Scott R. Plotkin, Claas Röhl
|
| 16:30-16:45 | Coffee Break / Posters / Exhibition |
| 16:45-18:00 | Plenary 5: New Therapeutic Developments – Future Clinical Trials and Clinical Trial Design – Preclinical Drug Development – Part 2
Amedeo A. Azizi, Johannes Gojo, Scott R. Plotkin, Claas Röhl
|
| 18:00-18:15 | Meeting Closure / Farewell |
Scientific Programme Committee
Clinical Science
-
Assoc. Prof. Dr. Amedeo Azizi
(AT) -
Dr. Laura Fertitta
(FR)
Basic Science
-
Ao. Prof. Dr. Katharina Wimmer
(AT) -
Eduard Serra, PhD
(ES)
Patient Advocate
-
Ing. Claas Röhl
(AT) -
Gilles Atlan
(UK / IL)
The 2026 European Neurofibromatosis Conference in Vienna (12–14 November) is now fully booked. Explore advances in NF1, Schwannomatosis, and patient-centred research at Hyatt Regency Vienna (previously Andaz Vienna Am Belvedere).