Patient involvement in
Neurofibromatosis care
and research

2026 European NF Conference

2026 European NF Conference

Programme Overview

The 2026 European Neurofibromatosis conference will focus on patient involvement in Neurofibromatosis research and care, bringing together leading experts, clinicians, researchers, and patient representatives from across Europe and beyond. Together, we will explore the latest advances in understanding and managing Neurofibromatosis type 1, NF2-related and non-related Schwannomatosis, and discuss how collaborative approaches can improve both scientific progress and patient outcomes.

The 2026 European NF Conference will apply for CME accreditation through EACCME, the European accreditation body, which offers accreditation for events worldwide. EACCME credits are recognised by the AMA and RCPSC.

Preliminary Programme

Thursday, 12 November 2026

Time Sessions
12:00-12:10 Welcome
12:10-12:40 Keynote 1: From Neural Crest to Schwann Cell Lineage
12:40-14:30 Plenary 1: Genetic Aspects of Neurofibromatosis Type 1, Schwannomatosis and Related Disorders
14:30-15:00 Break / Posters
15:00-16:30
Hall 1
Clinical Session 1:
Neuropsychosocial Implications
Hall 2
Basic Session 1:
Preclinical Models for Neurofibromatosis Type 1 and Schwannomatosis Pathogenesis
16:30-16:45 Break / Posters
16:45-18:15
Hall 1
Clinical Session 2 (Joint with Basic Science):
Bone and Orthopaedic Aspects of NF1
Hall 2
Basic Session 2:
Basic Biology underlying Neurofibromatosis Type 1 and Schwannomatosis
18:30-21:00 Welcome Reception and Poster Session

Friday, 13 November 2026

Time Sessions
08:00-09:30
Hall 1
Clinical Session 3:
Cutaneous Manifestations in Neurofibromatosis
Hall 2
Basic Session 3:
Basic and Translational Research in Schwannomatosis: Selected from Abstracts
09:30-09:50 Break / Posters
09:50-10:20 Keynote 2: Evidence to Action - How Advocacy Works Best
10:20-12:00 Plenary 2: Together - Patient Involvement in Research and Clinic
12:00-13:10 Lunch Symposium during Lunch Break
13:10-14:25 Plenary 3: Malignant Progression from Neurofibroma to MPNST – Part 1
14:25-14:50 Break / Posters
14:50-16:10 Plenary 3: Malignant Progression from Neurofibroma to MPNST – Part 2
16:10-16:30 Break / Posters
16:30-18:00
Hall 1
Clinical Session 4:
SWN Basket Session (Pain, Hybrid Tumours, etc.)
Hall 2
Basic Session 4:
Basic and Translational Research in Neurofibromatosis Type 1: Selected from Abstracts
19:30-23:00 Conference Dinner

Saturday, 14 November 2026

Time Sessions
08:00-08:45 Keynote 3: Organoids
08:45-10:10 Plenary 4: CNS Tumours in Neurofibromatosis Type 1 and Schwannomatosis
10:10-10:30 Break / Posters
10:30-11:50
Hall 1
Clinical Session 5:
Imaging in Neurofibromatosis / SWN
Hall 2
Basic Session 5:
Genomics and Bioinformatics for Neurofibromatosis Type 1 and Schwannomatosis
11:50-13:00 Lunch Symposium during Lunch Break
13:00-14:00
Hall 1
Clinical Session 6:
Rare Manifestations
Hall 2
Basic Session 6:
AI and Big Data in Neurofibromatosis Type 1 and Schwannomatosis Research
14:00-14:20 Break / Posters
14:20-14:40 Poster Awards
14:40-15:30 Theodor Schwann Awards and Talk by Awardees
15:30-16:30 Plenary 5: New Therapeutic Developments – Future Clinical Trials and Clinical
Trial Design – Preclinical Drug Development – Part 1
16:30-16:45 Break / Posters
16:45-17:45 Plenary 5: New Therapeutic Developments – Future Clinical Trials and Clinical
Trial Design – Preclinical Drug Development – Part 2
17:45-18:00 Meeting Closure / Farewell

Scientific Programme Committee

Clinical Science
  • Assoc. Prof. Dr. Amedeo Azizi (AT)
  • Dr. Laura Fertitta (FR)
Basic Science
  • Ao. Prof. Dr. Katharina Wimmer (AT)
  • Eduard Serra, PhD (ES)
Patient Advocate
  • Ing. Claas Röhl (AT)
  • Gilles Atlan (UK / IL)